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What is Thalassaemia
Thalassaemia is a genetically inherited blood disorder, when both parents are Thalassaemia carriers(trait) their child may become diseased. A person born with Thalassaemia disease suffers from chronic anemia. As a result their growth is stunted and without any treatment they usually die by the age of 5 years.
 
Geographical Distribution of Thalassaemia

Thalassaemia disease is not found all over the world. For some reasons it is not fully understood the disease is mainly prevalent in countries around Mediterranean like Greece,Italy, Cyprus, Turkey, Egypt, Morocco, Tunisia, etc and then a narrow south eastern band comprising countries like Palestine, Iran, Saudi Arabia, Afghanistan, Pakistan, part of India,Maldives, Bangladesh, Myanmar, Thailand, Malaysia, Part of Indonesia etc. Even though around Mediterranean the disease is homozygote Beta Thalassaemia, as one travels southeast haemoglobin E trait becomes more and more prevalent and the disease becomes somewhat of intermediate nature called HbE/Beta Thalassaemia.In fact Thailand eastward it is more E than Beta. Pakistan India and Bangladesh are about half and half with HbE and Beta trait. Consequently most of the diseased children of this region are HbE/Beta Thalassaemia.

 

Thalassaemia in Bangladesh

According to who publication No.8-5 about 7-8% of the population of Bangladesh are carriers of Thalassaemia and the blood related genetic disorder like HbE disease. Bangladesh Thalassaemia society also felt the necessary to carryout a survey to ascertain how many people are carriers of Thalassaemia and HbE disease. Accordingly BTS organized survey among 1022 marriageable college and University Students of both sexes with the help and assistance of Canadian International Development Agency. Students were selectively drown from Dhaka , Chittagong , Rajshahi, Khulna , Barisal and Sylhet divisions of the country. The survey revealed that of the total 1022 students the number of Thalassaemia beta carriers were 4.5% and HbE trait 5.18% with a cumulative total of 9.68% carriers. The above results represent a fraction of the population but it gives some indication of the extent of carrier status and implies the necessity of extensives survey at district and Upazila(sub-districts) levels all over the country. The above sample survey leads to the assumption that 5000 to 6000 children are born every with this deadly disease and consequently embrace death amidst anguish and hassle.
 
 
 
 
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