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| Emergence
of Bangladesh Thalassaemia Samity (Society): |
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In
Bangladesh till recently, people were not aware of this
killer disease. As such there was no survey carried
out ascertain the number of Thalassaemia in the country.There
is also no specific data about how many people are carrying
Thalassaemia trait in this country. To ascertain how
many people are born with Thalassaemia, and to provide
them medical support and to carry out mass awareness
campaign, the patients of the Thalassaemia patients,
at a meeting decided to from a society in 1989 in the
name and style “ Bangladesh Thalassaemia Samity”
(Bangladesh Thalassaemia Society) with Eng. Omar Golam
Rabbany as its President. The main task before the society
were outlined as follows: |
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to provide treatment facilities to the Thalassaemics.
to give a regular blood transfusion to the patients.
to collect blood for the patients for transfusion.
to establish a blood bank to store blood.
to setup a laboratory for blood screening for safe transfusion
of blood.
to prevent the disease through Genetic councilling.
to carryout a survey to ascertain the number of carriers
of Thalassaemia and the number of the patients.
to hold regular seminar, symposium and working on Thalassaemia
to setup a research centre for gene analysis, DNA pre-natal
and anti-natal tests and other blood related diseases.
to launch campaign for blood screeining before marriage.
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Bangladesh
Thalassaemia Hospital |
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With
a vision to contain and prevent the disease the samity(society)
felt the necessity to have a hospital for providing
one stop service to the Thalassaemia patients as there
was no hospital, Clinic and medical facilities available
in the country for providing treatment to the Thalassaemia
patients. As a first step a small scale blood transfusion
center was setup by the society with Eng. Omar Golam
Rabbany as its president at his own residence at 7 Green
Square,Green Road, Dhaka. Such activities were first
registered with the social welfare department of the
Govt. of Bangladesh in 1994.It followed registration
with NGO Bureau of GOB and enlistment of membership
with the Thalassaemia International Federation(TIF),
Cyprus.
The Bangladesh Thalassaemia Hospital was finally affiliated
with the Health Department of the Govt. of Bangladesh
in 2004. As the hospital activities were expanded and
the pressure of the patients were mounting, the hospital
was shifted to its present premise at Green Garden Tower,
25/A, Green Road, Dhaka.
The lone hospital of its kind in the country is an unique
health care institute providing ONE STOP MEDICAL SERVICE
to the Thalassaemia patients and carrying out research
activities on various genetic disorder.
Generous donations and assistance providing by the Japan
Embassy, The British High Commission, Canadian Government,
Mondial Group of Singapore and other donors and organizations
helped establish the Bangladesh Thalassaemia Hospital
in the country.
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